LGBT Best and Promising Practices Throughout the Cancer Continuum

Explore the best and promising practices, understand cross-cutting issues, and filter the strategies throughout the stages of the cancer continuum.

To learn about the people involved, the methodology employed, and, of course, the more than 100 Best and Promising Practices, download the full report.

Prevention/Health Promotion

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Best and Promising Practices Cross-Cutting Issues

Cultural competence to conduct LGBT health promotion activities should involve measurable competencies, including but not limited to a measure of engagement with the local LGBT communities.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

Acknowledge and prioritize health promotion programs in consultation and collaboration with the LGBT communities within your service area to ensure that messages are targeting the communities’ perceived needs.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Develop and implement effective guidelines, interventions, and programs aimed at decreasing the cancer burden for LGBT populations, with intentional and careful adaptation for all segments of the LGBT communities.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Develop and/or implement LGBT-specific health education and prevention messages, materials (print and online), and resources, developed in consultation with community advisory boards and other consumer groups.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Implement and support LGBT-tailored programs, messages, and policies that improve access to physical activity, nutrition, obesity prevention, smoking cessation, cancer awareness, cancer related vaccines (i.e., human papillomavirus (HPV) immunizations), and chronic disease programs.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Include LGBT communities in state cancer plans.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Integrate lessons learned from established Department of Health programs that have existing relationships with the communities (i.e., HIV/AIDS, tobacco).

Cross-Cutting Issues
  • Icon for Information

Screening

 info
Best and Promising Practices Cross-Cutting Issues

Develop and/or use LGBT-tailored cancer screening guidelines for LGBT communities.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information
  • Icon for Diversity

Engage culturally competent patient navigators for LGBT patients from the time of screening through the cancer care continuum.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information
  • Icon for Diversity

Ensure that LGBT patients receive prompt follow up after abnormal screening results, as well as timely and culturally competent coordination of transition to cancer care in order to mitigate attrition and delays.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Tailor screening messages and utilize effective media with particular attention to diverse sub-groups within LGBT communities.

  • For example, involve screening messengers, ambassadors, and witnesses known as credible in their respective communities
Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity

Educate the LGBT communities about the importance of cancer screening, with emphasis on malignancies that disproportionately affect LGBT individuals, using a variety of media and campaigns shown to be effective or promising with LGBT communities in general and/or with specific sub-groups.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Provide management, leadership, and coordination for LGBT-centered screening promotions.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Establish partnerships with multiple (3 minimum, local or national) LGBT organizations to vet and provide technical assistance in the development and implementation of screening campaigns/materials.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Diagnosis

 info
Best and Promising Practices Cross-Cutting Issues

Eliminate discriminatory and arbitrary exclusion from diagnostic testing, (e.g., due to discordance between gender markers and anatomy).

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Develop and distribute culturally appropriate information materials at time of diagnosis, procedures, and at follow-up appointments.

Cross-Cutting Issues
  • Icon for Information

Treatment

 info
Best and Promising Practices Cross-Cutting Issues

Address sexual intimacy and other quality of life (e.g., fertility, gender reassignment surgery) concerns as they relate to treatment options.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Be aware of and responsive to barriers based on SOGI in symptom management.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Collaborate with hospitals and other health care systems to include LGBT issues in Patient Bill of Rights.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Create and/or expand culturally competent LGBT provider listings/registries.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Survivorship

 info
Best and Promising Practices Cross-Cutting Issues

Avoid gendered assumptions (e.g., breast reconstruction always being desired), including battle metaphors (e.g., fighting cancer) when providing services to LGBT cancer survivors.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

Address directly (or via referral) the legal and financial impact of cancer on LGBT individuals and their families of choice.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Develop protocols for protecting the fertility options of LGBT cancer patients prior to treatment and include survivors in decision making about fertility.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Offer LGBT survivors and their family of choice culturally competent information about the impact of cancer treatment on their sexual health, intimacy, and reproductive health.

Cross-Cutting Issues
  • Icon for Information
Public Health Department Recommendation:

Develop and maintain a list of LGBT culturally competent support groups, programs, and resources.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Support policies, systems change, research, and programs that enhance survivorship for LGBT patients and their families (legal, psychosocial, employment, primary care, nutrition support, access to care, etc.).

Cross-Cutting Issues
  • Icon for Information

Palliative Care & End Of Life

 info
Best and Promising Practices Cross-Cutting Issues

Provide ongoing training to all hospice/palliative care providers and staff to ensure culturally competent care to LGBT patients and families of choice in all care settings (including hospice, long-term care, and skilled nursing facilities).

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

At the end-of-life, dignified death is a priority for LGBT patients. Unique topics such as continuation of hormone therapy for transgender patients as well as respect for patient choice of burial and death rituals need to be addressed.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Support policies, systems change, research, and programs that increase the availability of culturally competent end-of-life and palliative care for the LGBT community.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Support LGBT-tailored interventions and health promotion.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity

Prevention/Health Promotion

 info
Best and Promising Practices Cross-Cutting Issues

Cultural competence to conduct LGBT health promotion activities should involve measurable competencies, including but not limited to a measure of engagement with the local LGBT communities.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

Acknowledge and prioritize health promotion programs in consultation and collaboration with the LGBT communities within your service area to ensure that messages are targeting the communities’ perceived needs.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Develop and implement effective guidelines, interventions, and programs aimed at decreasing the cancer burden for LGBT populations, with intentional and careful adaptation for all segments of the LGBT communities.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Develop and/or implement LGBT-specific health education and prevention messages, materials (print and online), and resources, developed in consultation with community advisory boards and other consumer groups.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Implement and support LGBT-tailored programs, messages, and policies that improve access to physical activity, nutrition, obesity prevention, smoking cessation, cancer awareness, cancer related vaccines (i.e., human papillomavirus (HPV) immunizations), and chronic disease programs.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Include LGBT communities in state cancer plans.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Integrate lessons learned from established Department of Health programs that have existing relationships with the communities (i.e., HIV/AIDS, tobacco).

Cross-Cutting Issues
  • Icon for Information

Screening

 info
Best and Promising Practices Cross-Cutting Issues

Develop and/or use LGBT-tailored cancer screening guidelines for LGBT communities.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information
  • Icon for Diversity

Engage culturally competent patient navigators for LGBT patients from the time of screening through the cancer care continuum.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information
  • Icon for Diversity

Ensure that LGBT patients receive prompt follow up after abnormal screening results, as well as timely and culturally competent coordination of transition to cancer care in order to mitigate attrition and delays.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Tailor screening messages and utilize effective media with particular attention to diverse sub-groups within LGBT communities.

  • For example, involve screening messengers, ambassadors, and witnesses known as credible in their respective communities
Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity

Educate the LGBT communities about the importance of cancer screening, with emphasis on malignancies that disproportionately affect LGBT individuals, using a variety of media and campaigns shown to be effective or promising with LGBT communities in general and/or with specific sub-groups.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Provide management, leadership, and coordination for LGBT-centered screening promotions.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Establish partnerships with multiple (3 minimum, local or national) LGBT organizations to vet and provide technical assistance in the development and implementation of screening campaigns/materials.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Diagnosis

 info
Best and Promising Practices Cross-Cutting Issues

Eliminate discriminatory and arbitrary exclusion from diagnostic testing, (e.g., due to discordance between gender markers and anatomy).

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Develop and distribute culturally appropriate information materials at time of diagnosis, procedures, and at follow-up appointments.

Cross-Cutting Issues
  • Icon for Information

Treatment

 info
Best and Promising Practices Cross-Cutting Issues

Address sexual intimacy and other quality of life (e.g., fertility, gender reassignment surgery) concerns as they relate to treatment options.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Be aware of and responsive to barriers based on SOGI in symptom management.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Collaborate with hospitals and other health care systems to include LGBT issues in Patient Bill of Rights.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Create and/or expand culturally competent LGBT provider listings/registries.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity

Survivorship

 info
Best and Promising Practices Cross-Cutting Issues

Avoid gendered assumptions (e.g., breast reconstruction always being desired), including battle metaphors (e.g., fighting cancer) when providing services to LGBT cancer survivors.

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

Address directly (or via referral) the legal and financial impact of cancer on LGBT individuals and their families of choice.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Develop protocols for protecting the fertility options of LGBT cancer patients prior to treatment and include survivors in decision making about fertility.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information

Offer LGBT survivors and their family of choice culturally competent information about the impact of cancer treatment on their sexual health, intimacy, and reproductive health.

Cross-Cutting Issues
  • Icon for Information
Public Health Department Recommendation:

Develop and maintain a list of LGBT culturally competent support groups, programs, and resources.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Support policies, systems change, research, and programs that enhance survivorship for LGBT patients and their families (legal, psychosocial, employment, primary care, nutrition support, access to care, etc.).

Cross-Cutting Issues
  • Icon for Information

Palliative Care & End Of Life

 info
Best and Promising Practices Cross-Cutting Issues

Provide ongoing training to all hospice/palliative care providers and staff to ensure culturally competent care to LGBT patients and families of choice in all care settings (including hospice, long-term care, and skilled nursing facilities).

Cross-Cutting Issues
  • Icon for Workforce
  • Icon for Information

At the end-of-life, dignified death is a priority for LGBT patients. Unique topics such as continuation of hormone therapy for transgender patients as well as respect for patient choice of burial and death rituals need to be addressed.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
  • Icon for Diversity
Public Health Department Recommendation:

Support policies, systems change, research, and programs that increase the availability of culturally competent end-of-life and palliative care for the LGBT community.

Cross-Cutting Issues
  • Icon for Systems
  • Icon for Information
Public Health Department Recommendation:

Support LGBT-tailored interventions and health promotion.

Cross-Cutting Issues
  • Icon for Information
  • Icon for Diversity
;