LGBT Best and Promising Practices Throughout the Cancer Continuum

Explore the best and promising practices, understand cross-cutting issues, and filter the strategies throughout the stages of the cancer continuum.

To learn about the people involved, the methodology employed, and, of course, the more than 100 Best and Promising Practices, download the full report.

Prevention/Health Promotion

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Best and Promising Practices Cross-Cutting Issues

Include SOGI questions on population-based surveillance instruments supported through government funds.

  • For example, BRFSS, NHANES, NHIS, YRBSS
Cross-Cutting Issues
  • Icon for Data
Public Health Department Recommendation:

Include SOGI data in risk and behavioral surveillance tools, Behavioral Risk Factor Surveillance System (BRFSS), Youth Behavioral Risk Factor Surveillance System (YRBSS), Adult Tobacco Survey (ATS), etc.

Cross-Cutting Issues
  • Icon for Data

Screening

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Best and Promising Practices Cross-Cutting Issues

Identify LGBT individuals who are at higher risk for cancer and revise screening guidelines to incorporate LGBT-inclusive risk assessment.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems
Public Health Department Recommendation:

Include LGBT as a designated special population in cancer screening programs funded by Health Departments to ensure there is adequate tailored outreach, tailored services, and program monitoring.

Cross-Cutting Issues
  • Icon for Data

Diagnosis

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Best and Promising Practices Cross-Cutting Issues

Collect relevant diagnostic SOGI data in SEER, NPCR, and other population-based registries and databases.

Cross-Cutting Issues
  • Icon for Data

Collect and include SOGI data in patient intake and registration forms, medical records, patient satisfaction surveys, and health outcome measures. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Include LGBT individuals in research trials of diagnostic tests.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems
Public Health Department Recommendation:

Educate about the need for NAACR standards to include SOGI.

Cross-Cutting Issues
  • Icon for Data
Public Health Department Recommendation:

Collaborate with NPCR, SEER, ACS, and others on the reporting of SOGI data as part of cancer incidence and mortality publications.

Cross-Cutting Issues
  • Icon for Data

Treatment

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Best and Promising Practices Cross-Cutting Issues

Collect relevant diagnostic SOGI data in SEER, NPCR, and other population-based registries and databases. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data

Include SOGI categories as part of core demographic data in clinical studies/trials and a requirement for human subject research.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Collect SOGI data in patient intake forms, clinical encounters, patient satisfaction surveys, and health outcome measures. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Survivorship

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Best and Promising Practices Cross-Cutting Issues

Fund and conduct research on the effectiveness of multiple intervention strategies with LGBT cancer patients/survivors.

Cross-Cutting Issues
  • Icon for Data

Palliative Care & End Of Life

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Best and Promising Practices Cross-Cutting Issues

Create open-access registries with ratings of hospices' and health care organization's cultural competence in caring for LGBT patients.

Cross-Cutting Issues
  • Icon for Data

Include SOGI variables in quality of care metrics and professional organizations, and consumer surveys.

Cross-Cutting Issues
  • Icon for Data

Collect SOGI data for all patients at initial encounters, and create individualized plans in regard to disclosure or nondisclosure of SOGI to others.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Conduct research on the end-of-life/chronic illness experiences of LGBT patients and their caregivers, including the development of LGBT-specific psychosocial, spirituality, and existential distress measures.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Diversity

Prevention/Health Promotion

 info
Best and Promising Practices Cross-Cutting Issues

Include SOGI questions on population-based surveillance instruments supported through government funds.

  • For example, BRFSS, NHANES, NHIS, YRBSS
Cross-Cutting Issues
  • Icon for Data
Public Health Department Recommendation:

Include SOGI data in risk and behavioral surveillance tools, Behavioral Risk Factor Surveillance System (BRFSS), Youth Behavioral Risk Factor Surveillance System (YRBSS), Adult Tobacco Survey (ATS), etc.

Cross-Cutting Issues
  • Icon for Data

Screening

 info
Best and Promising Practices Cross-Cutting Issues

Identify LGBT individuals who are at higher risk for cancer and revise screening guidelines to incorporate LGBT-inclusive risk assessment.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems
Public Health Department Recommendation:

Include LGBT as a designated special population in cancer screening programs funded by Health Departments to ensure there is adequate tailored outreach, tailored services, and program monitoring.

Cross-Cutting Issues
  • Icon for Data

Diagnosis

 info
Best and Promising Practices Cross-Cutting Issues

Collect relevant diagnostic SOGI data in SEER, NPCR, and other population-based registries and databases.

Cross-Cutting Issues
  • Icon for Data

Collect and include SOGI data in patient intake and registration forms, medical records, patient satisfaction surveys, and health outcome measures. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Include LGBT individuals in research trials of diagnostic tests.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems
Public Health Department Recommendation:

Educate about the need for NAACR standards to include SOGI.

Cross-Cutting Issues
  • Icon for Data
Public Health Department Recommendation:

Collaborate with NPCR, SEER, ACS, and others on the reporting of SOGI data as part of cancer incidence and mortality publications.

Cross-Cutting Issues
  • Icon for Data

Treatment

 info
Best and Promising Practices Cross-Cutting Issues

Collect relevant diagnostic SOGI data in SEER, NPCR, and other population-based registries and databases. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data

Include SOGI categories as part of core demographic data in clinical studies/trials and a requirement for human subject research.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Collect SOGI data in patient intake forms, clinical encounters, patient satisfaction surveys, and health outcome measures. Then ensure SOGI data are collected in cancer registries, other population-based registries, and databases.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Survivorship

 info
Best and Promising Practices Cross-Cutting Issues

Fund and conduct research on the effectiveness of multiple intervention strategies with LGBT cancer patients/survivors.

Cross-Cutting Issues
  • Icon for Data

Palliative Care & End Of Life

 info
Best and Promising Practices Cross-Cutting Issues

Create open-access registries with ratings of hospices' and health care organization's cultural competence in caring for LGBT patients.

Cross-Cutting Issues
  • Icon for Data

Include SOGI variables in quality of care metrics and professional organizations, and consumer surveys.

Cross-Cutting Issues
  • Icon for Data

Collect SOGI data for all patients at initial encounters, and create individualized plans in regard to disclosure or nondisclosure of SOGI to others.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Systems

Conduct research on the end-of-life/chronic illness experiences of LGBT patients and their caregivers, including the development of LGBT-specific psychosocial, spirituality, and existential distress measures.

Cross-Cutting Issues
  • Icon for Data
  • Icon for Diversity
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